Our guidelines help create a safe, supportive, and welcoming environment for all families affected by Robinow Syndrome.
We treat every member with kindness, empathy, and understanding, regardless of their background or journey.
We protect our community's privacy and maintain a safe space for sharing personal experiences.
We share helpful information while being clear about the difference between experience and medical advice.
Share your journey, challenges, successes, and insights about living with Robinow Syndrome.
No question is too simple. Ask about anything related to Robinow Syndrome, daily life, or community resources.
Provide emotional support, celebrate milestones, and offer encouragement to fellow community members.
Share helpful articles, research findings, educational materials, or community resources that others might benefit from.
Build friendships, find local connections, and create lasting relationships within our community.
Share news about research developments, clinical trials, and medical advances related to Robinow Syndrome.
While sharing experiences is encouraged, please don't provide specific medical recommendations or diagnoses. Always encourage consulting with healthcare professionals.
Any form of harassment, discrimination, bullying, or hate speech based on race, gender, religion, sexual orientation, or any other characteristic is strictly prohibited.
Don't share phone numbers, addresses, or other personal contact information in public posts. Use private messages instead.
This community is not for selling products or services. Commercial promotion, advertising, or spam is not allowed.
Keep discussions relevant to Robinow Syndrome, related medical conditions, or topics that directly affect our community.
Don't post copyrighted material without permission. When sharing articles or research, provide links and brief summaries instead of copying entire texts.
This community provides peer support and shared experiences, not medical advice. Information shared here should never replace professional medical consultation, diagnosis, or treatment.
Always consult with qualified healthcare professionals for:
If you're experiencing a medical emergency, contact your local emergency services immediately.
If you encounter content or behavior that violates our guidelines:
All reports are reviewed promptly and confidentially.
Depending on the severity and frequency of violations:
We aim to be fair while protecting our community.
If you have questions about our community guidelines or need clarification on any policy, please don't hesitate to reach out to our support team.
Contact SupportLast updated: January 2025
These guidelines may be updated periodically to serve our community better.