ROBINOW SYNDROME FOUNDATION
Branson, Missouri
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Wednesday Aug. 4th
* Early arrivals of families at various times throughout the day
* Check in at Comfort-Inn Thousand Hill
* Gather poolside at Comfort Inn for meet-and-greet / socialization
* Meet and Greet New Families (Meeting Room)
* Dinner - Let's meet in the lobby and head out to dinner
* Enjoy social time after dinner
Thursday Aug 5th
* Arrival of families at various times throughout the day continues. Welcome Everyone!
* Check-Inn at Comfort-Inn Thousand Hills
* Meet for breakfast "provided with hotel reservation" in the dinning area or we can gather and eat together in the meeting room
* 10 a.m. Meeting Room - Short presentation from the Sight and Sound Theatre - special discount tickets for "Noah the Musical" available
* Lets go check out Branson. Nearby activities - so many to choose from. On your own or as a group. Some families attending "Noah the Musical".
* Lunch on your own/or as a group.
* 3:30 Showtime Sight and Sound Theatre "Noah the Musical" for all families attending this show.
* Dinner on your own/or as a group (May order Pizza Hut in to hotel)
* Begin meeting individually with Juliana Mazzeu - voluntary. Sign up sheet and times will be set at hotel.
* Poolside everyone for splashing fun in the hot Aug days.
Friday Aug 6th
* Meet for breakfast in hotel
* Family fun day at Silver Dollar City - Tickets with Meal voucher at discounted rates.
* Lunch as a group or on your own (Many families eating at Silver Dollar City)
* Meet with Juliana individually (times will be set)
* Evening/ poolside for socialization
Saturday Aug 7th
* Breakfast in hotel
* 10 a.m. Meeting room - Presentation on Robinow Syndrome. Opening speakers Karla and Kim with the Robinow Syndrome Foundation. 10:15 a.m. Presentation by Juliana Mazzzeu on Robinow Syndrome.
Special topic by Anita Hutton on Sleep Apnea.
Juliana to present information on Aarskogs Syndrome.
Open discussion time/question and answer.
* Meet for group and family pictures (area and time to be announced)
* Lunch as a group or on your own
* Dinner 5:00 p.m. Sadies Sideboard BBQ buffet sponsored by the foundation.
* 7:00 p.m. Traditional Cake served in the meeting room.
Sunday Aug 8th
* Meet for breakfast in the hotel / meeting room so we can say our Goodbye's. Lots of hugs to go around.
* Departures
| Contact: | |||
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Karla Kruger, Founder/President robinowfoundation@comcast.net Phone daytime 763-291-7190 Phone evenings 763-434-1152 |
Kim Ortiz-Kremeier, Resource Manager robinoworg@yahoo.com Phone cell 417-671-2500 Phone home/business 417-858-8836 |
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