P.O. Box 1072, Anoka, MN 55303 | 763-434-1152

We are a "little" group of families reaching out for one another's support on
dealing with this medical rarity and how it affects all of our lives.

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Karla Kruger, Founder/President
robinowfoundation@comcast.net
Phone daytime 763-291-7190
Phone evenings 763-434-1152

Kim Ortiz-Kremeier, Resource Manager
robinoworg2@centurytel.net
Phone cell 417-671-2500
Phone home/business 417-858-8836