The Robinow Syndrome Foundation

We are a "little" group of families reaching out for one anothers support on dealing with this medical rarity and how it affects all of our lives.

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Member Activity

67 Minutes Ago

Amanda has added Kimberly Ortiz-Kremeier as a Friend

4 Hours Ago

Amanda joined Robinow Syndrome Foundation

20 Hours Ago

Megan has added Cory M. as a Friend

May 13th

Michelle joined Robinow Syndrome Foundation

May 11th

Megan has added Anita Hutton as a Friend

May 10th

Megan posted a message on her profile.
"Hello! Mytwo year old son was just diagnosedwith Robinow Syndrome. There is nota lot of information pertaining to thesyndrome available. Iam interested in talking with parents that havehad..."

May 10th

Megan uploaded a new profile photo.

May 10th

Megan has added Kimberly Ortiz-Kremeier as a Friend

May 10th

Robinow Foundation posted a message on Megan's profile.
"Megan, Welcome!"

May 9th

Megan joined Robinow Syndrome Foundation
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