The Robinow Syndrome Foundation

We are a "little" group of families reaching out for one anothers support on dealing with this medical rarity and how it affects all of our lives.

In memory of Joyce Motzkin
Memorial Scholarship Fund


Welcome To The Robinow Syndrome Foundation.

ANNOUNCING THE 2014 RSF CONVENTION JULY 17 - 20TH
CHICAGO, IL
Join us on Facebook

Convention 2012 - Panama City Beach - Thank you Shane's BBQ for a memorable night

Website Fund
Member Activity

Apr 4th

steve joined Robinow Syndrome Foundation

Mar 27th

aejuqf3798 joined Robinow Syndrome Foundation

Mar 14th

andrefujioka joined Robinow Syndrome Foundation

Mar 13th

aeshie8o0o5w joined Robinow Syndrome Foundation

Mar 4th

caro joined Robinow Syndrome Foundation

Feb 21st

Robinow Foundation posted a message on Lacy's profile.
"Welcome, Tell us a little about yourself. Kim Kremeier RSF"

Feb 21st

jacinfra joined Robinow Syndrome Foundation

Feb 21st

bvdwexydge joined Robinow Syndrome Foundation

Feb 21st

hasnin joined Robinow Syndrome Foundation

Feb 20th

Barbara Starr joined Robinow Syndrome Foundation
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