We are a "little" group of families reaching out for one another's support on dealing with this medical rarity and how it affects all of our lives.

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P.O. Box 1072
Anoka, MN 55303
763-434-1152
Contact Us:
Karla Kruger, Founder/President robinowfoundation@comcast.net
Phone daytime 763-291-7190, evenings 763-434-1152
Kim Ortiz-Kremeier, Resource Manager robinoworg2@centurytel.net
Phone cell 870-654-3475, home/business 417-858-8836