The Robinow Syndrome Foundation

We are a "little" group of families reaching out for one anothers support on dealing with this medical rarity and how it affects all of our lives.

Welcome To The Robinow Syndrome Foundation.

ANNOUNCING THE 2014 RSF CONVENTION JULY 17 - 20TH
CHICAGO, IL
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Convention 2012 - Panama City Beach - Thank you Shane's BBQ for a memorable night

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