The Robinow Syndrome Foundation

We are a "little" group of families reaching out for one anothers support on dealing with this medical rarity and how it affects all of our lives.

In memory of Joyce Motzkin
Memorial Scholarship Fund


Welcome To The Robinow Syndrome Foundation.

New Changes to the page coming soon.

Join us on Facebook

Convention 2012 - Panama City Beach - Thank you Shane's BBQ for a memorable night

Website Fund
Member Activity

May 25th

Robinow Foundation posted a message on Maja's profile.
"Welcome!"

May 25th

Maja joined Robinow Syndrome Foundation

May 21st

Robinow Foundation posted a message on abeer 's profile.
"Welcome!"

May 10th

abeer joined Robinow Syndrome Foundation

May 8th

Kimberly Ortiz-Kremeier posted a message on Megan's profile.
"Hello Christine, Welcome. I see you have some questions. I apologize for not seeing your post prior to your appointment. Here is my email so..."

May 8th

gigi joined Robinow Syndrome Foundation

Apr 23rd

haldachay joined Robinow Syndrome Foundation

Apr 22nd

Megan posted a message on her profile.
"Hello My name is Christine and I have a daughter named Megan. She is going to be 19 this Friday May 26th. When she was little geneticist believed..."

Apr 3rd

Robinow Foundation posted a message on Roku Netflix 2010's profile.
"Welcome to the Robinow Syndrome Foundation."

Apr 3rd

Roku Netflix 2010 joined Robinow Syndrome Foundation
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