The Robinow Syndrome Foundation

We are a "little" group of families reaching out for one anothers support on dealing with this medical rarity and how it affects all of our lives.

In memory of Joyce Motzkin
Memorial Scholarship Fund

Welcome To The Robinow Syndrome Foundation.

New Changes to the page coming soon.

Join us on Facebook

Convention 2012 - Panama City Beach - Thank you Shane's BBQ for a memorable night

Website Fund

Member Activity

	May 25th Robinow Foundation posted a message on Maja's profile. "Welcome!"
	May 25th Maja joined Robinow Syndrome Foundation
	May 21st Robinow Foundation posted a message on abeer 's profile. "Welcome!"
	May 10th abeer joined Robinow Syndrome Foundation
	May 8th Kimberly Ortiz-Kremeier posted a message on Megan's profile. "Hello Christine, Welcome. I see you have some questions. I apologize for not seeing your post prior to your appointment. Here is my email so..."
	May 8th gigi joined Robinow Syndrome Foundation
	Apr 23rd haldachay joined Robinow Syndrome Foundation
	Apr 22nd Megan posted a message on her profile. "Hello My name is Christine and I have a daughter named Megan. She is going to be 19 this Friday May 26th. When she was little geneticist believed..."
	Apr 3rd Robinow Foundation posted a message on Roku Netflix 2010's profile. "Welcome to the Robinow Syndrome Foundation."
	Apr 3rd Roku Netflix 2010 joined Robinow Syndrome Foundation

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