Robinow Syndrome Foundation

The Robinow Syndrome Foundation

We are a "little" group of families reaching out for one anothers support on dealing with this medical rarity and how it affects all of our lives.

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Robinow Syndrome Foundation

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Member Activity

	67 Minutes Ago Amanda has added Kimberly Ortiz-Kremeier as a Friend
	4 Hours Ago Amanda joined Robinow Syndrome Foundation
	20 Hours Ago Megan has added Cory M. as a Friend
	May 13th Michelle joined Robinow Syndrome Foundation
	May 11th Megan has added Anita Hutton as a Friend
	May 10th Megan posted a message on her profile. "Hello! Mytwo year old son was just diagnosedwith Robinow Syndrome. There is nota lot of information pertaining to thesyndrome available. Iam interested in talking with parents that havehad..."
	May 10th Megan uploaded a new profile photo.
	May 10th Megan has added Kimberly Ortiz-Kremeier as a Friend
	May 10th Robinow Foundation posted a message on Megan's profile. "Megan, Welcome!"
	May 9th Megan joined Robinow Syndrome Foundation

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