We are a "little" group of families reaching out for one another's support on
dealing with this medical rarity and how it affects all of our lives.
Robinow ConventionAugust 5,6,7,8
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| Contact: | |
| Karla Kruger, Founder/President robinowfoundation@comcast.net Phone daytime 763-291-7190 Phone evenings 763-434-1152 |
Kim Ortiz-Kremeier, Resource Manager robinoworg@yahoo.com Phone cell 417-671-2500 Phone home/business 417-858-8836 |